Last Wednesday we took Claire for her monthly cardiology check up. They did an echo and a chest xray and found that her heart was a little enlarged and there was some extra pressure in her lungs. Both of these are expected with her heart defect, but the Dr also said it was an indication that we need to get her surgery scheduled. He presented her case to the surgeons Tuesday and yesterday they called with a surgery date.
Pre-op is June 8 and surgery is on June 9.
I know that this surgery needs to happen and I know she will have more energy afterwards, but I just hate that she has to go through this. She has been doing so great with her PT, and her head control gets better everyday. It bums me out that we have to stop working on her tummy time for 6-8 weeks after the surgery.
At the same time, I'm glad just to get this over with. The surgery has been hanging over us for about 6 months now, and I'm glad just to finally have a date. It's good to know that after June 9 we can focus on her recovery, and not have to worry quite as much about every little cold or cough.
Right now, I'm not too worried about the surgery. I know that it will seem more real as the date gets closer, but first we have some fun family things coming up. Jake (my brother) will be home from his Marine training at the end of the month. He has a few days at home, and will be having his wedding, before he and his wife and kids pack up and move to San Diego. I'm so excited to see him and am thrilled that Claire's surgery didn't conflict with the wedding.
I know the feeling of JUST GET IT OVER WITH! We'll be thinking about you guys as the date nears; you'll have to let us know if there's anything you'll need while you're here in town. We'd be happy to bring a dinner some night you're at Children's! We're really not too far!
ReplyDeleteFunny about your brother- my hubby's an ex-Marine. We were stationed in San Diego, too! Which base is he going to? It's gorgeous out there- you'll have to go for a trip sometime. AND they have a base hotel that's really quite cheap (comparatively) that your brother can get you into :)
I'm so lucky that the only issue Jesenia had was her PDA and it closed on its own. Julian (my 4 year old) had heart surgery when he was 10 days old. It was unexpected since we took him home and he didn't have any issues. It wasn't open heart surgery - they were able to go in on his side and do the the surgery - but it was still scary. Good luck to Claire and I hope her surgery goes well!
ReplyDeleteWe will be thinking of Claire and praying for her speedy recovery:)
ReplyDeleteI think you will all be relieve once the surgery is over. Our thought and prayers are with your little angel.
ReplyDeleteOk, glad we have a date, your going on the Ski prayer list on the fridge! We will be thinking of Clarie and your family. I hope the day comes and goes quickly, so we can get back to smiles and cuddles!
ReplyDeleteHappy 4 months beautiful girl!
I am so sorry that you all have to go through this but it sounds like it is necessary. I will be thinking about you and Claire come June.
ReplyDeleteI really wish this wasn't the case (for both our babies' sake), but in a way, I'm glad we're going through this "together." I will be thinking of Claire, of you. We'll check updates. And, of course, we'll be providing our own. We can do this!
ReplyDeleteso happy to know you have a date on the calendar for claire's surgery!!! i know you have been waiting to just have a date set and to know when her heart will be "fixed"... thinking of you guys!
ReplyDeleteHi this is Natalie I just befriended you on facebook. you have pretty much said everything I have said about our little girls durgery. She is 4 1/2 mon. old and we wew just able to get her surgery date secheduled as well. June 8th. It really is good to have a date and to focus on getting her better. Good luck with everything I will be praying for you and your family.
ReplyDeleteI think the waiting is one of the worst parts. My imagination would run wild. Reality is far better than my imagination, so try to keep your mind from wandering to those dark corners.
ReplyDeletePraying for Claire and for you as you go down this path.
You are right - it is much better when the surgery is OVER. It is a day you dread now, but will treasure later - just focus on how much she needs this, and how much she will be able to do in the future because of this. You don't know us, but we will keep you and your family in our prayers as you go through this.
ReplyDelete-Amy (mom of a 2-yo with Ds, 2-years past his heart surgery now.)