Claire Audrey arrived by C-Section at 10:24 am on Weds Jan 13. She weighed 5 lbs 4 oz and was 17 3/4 inches long. She was about 3 weeks early and is still in the NICU. She is doing very, very well. She is currently in an ioslette as she has jaundice. In addition to the heart defect that we knew about, there is a second condition that the Drs are watching. There is a vessel in the heart that usually closes within a couple of days of birth. Claire's PDA is still open, so they started her on meds last night to hopefully close this without surgery. They will do another echo on her heart on Friday and hopefully the meds will have worked their magic. If not, there is a possibility that she may have to have surgery to close this.
As you know, there was a suspicion before birth that Claire might have Down syndrome. This was confirmed by a genetic screening. What this extra chromosome means to us is that there is more of her to love! She is already an absolute joy and we can't wait to get her home.
One of the common themes in the book Gifts was about how scared and nervous parents were about thier babies having Down syndrome, but that once the baby arrived they realized their fears were much worse than the reality. I felt exactly this way, and now I can happily say that I am one of those parents who isn't worried at all anymore. My daughter is beautiful and perfect in every way!