This has been one of those weeks where I can't seem to get anything done. I have so many things going at once (work, home, Claire) that I don't seem to be taking care of any of them well. Claire's upcoming open heart surgery (OHS) doesn't help either. I've been calling the hospital and the surgeon's office with tons of questions I as try to work out the logistics of being away from home for a couple of weeks. The stress of the surgery itself isn't helping either.
Claire's 4 month well baby appointment today was great. I just LOVE her doctor. He is close to our age with young kids of his own, and I love that he doesn't make me feel rushed at our appointments. He is also open to learning more about the best way to treat anything that may come up with Claire, and even thanked me today for allowing him to take care of her! I passed on the info for an online class on Down Syndrome: Healthcare Updates for the Primary Care Pediatrician and he was excited for the opportunity to learn more.
Claire's growth is wonderful. She is 11 lb 8 oz and 23 inches. She got one shot and one oral vaccine today and did worse with the oral med. She was asleep when the nurse came in and startled her and it put her in a grouchy mood!
This afternoon Claire had a play based vision screening. She really favors her right side, and we wanted to have her eyes checked out to see if that was the cause. Her eyes show a nystagmus, which is a jerky movement in her eye when she focuses to the left, which is her weak side. While it explains why she almost always looks to the right, we'll have to wait until after the OHS to have her eyes tested by a doctor.
I was hoping to have some pictures to add to this post, but I haven't cleaned my camera out in so long that my memory card is full. It's just one more thing I haven't gotten to lately...